Marjolein van Kessel
The mother of three children, the middle one was born with Congenital Melanocytic Naevus (CMN). My middle child (son) was born with Congenital Melanocytic Naevus, and also had neurological complications. When he was 13 years old he became ill and died of complications (Neurocutaneous Melanocytosis). CMN has an impact on the person with the condition, his siblings, parents, family, and friends. It’s my dedication to improve social care and healthcare as a patient advocate. I live in the Netherlands.
ePAG (European Patient Advocacy Group) Eurordis, ERN/Skin
Patient Group Leader Naevus International